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Vision loss can have a devastating impact
on an individual, and each person handles this life
changing event in their own unique way – getting along
well in some areas and perhaps, not so well in others.
If you are losing vision, you already know that many
otherwise ordinary tasks can quickly become full of fear
and worry. Having trouble cooking a meal, writing
checks, reviewing the mail, losing the ability to drive
safely – all can erode self confidence before you even
know it. Constantly relying on family and friends – who
often don’t understand vision loss and how to help, or
not help – can take a dramatic toll on personal morale.
This is why the sharing activities of a support group
are so often beneficial to people who develop low
vision. If you are having trouble learning to live with
vision loss, or want to meet other people who are also
dealing with vision related problems, a support group
can be a valuable resource.
A Low Vision Support Group is a gathering
of people with the common problem of vision loss. They
form or join such groups to discuss various aspects of
their problems including the emotional aspects of sight
loss, to investigate solutions and share resource
information. These groups range from well organized
gatherings sponsored by large organizations or agencies
and run by professional facilitators with psychology and
low vision training backgrounds, to informal “grass
roots” groups which spontaneously form. These latter
support groups are more casual and are usually held in
an individual’s home, at a church or senior center.
There is an “organizer” who is a lay person with a
vision impairment who is motivated to form the group.
Taking part in a Low Vision Support Group
offers many advantages to its members. One area of
support is resource sharing. Because there are very few
geographical areas with centralized information sources
for the vision impaired, finding out about available
services is often difficult and time consuming, and can
be a daunting task for someone who feels depressed and
isolated. Taking part in a support group provides much
information about available services, and results in an
increased access to such services by group members.
The groups also offer psychological
support. People who participate in Low Vision Support
Groups come to understand that others have similar
problems and experiences, and so their sense of
isolation is greatly reduced. Participants often
experience less depression and develop a more positive
attitude about their ability to function and lead
normal, productive lives. They value an atmosphere
where they can discuss aspects of living with vision
loss that they do not feel comfortable discussing with
normally sighted individuals who often do not understand
the problems resulting from diminished vision. Also,
the group experience can become social as well as
functional. The meetings deal with vision issues, but
may also include recreational activities such as games,
listening to recorded books, and going on group outings.
E.A.R.S. for EYES has put together this
National Directory of Low Vision Support Groups in an
effort to help people find and participate in what can
be a very rewarding and helpful activity.
This Directory is ongoing and is
continually expanding. If you know of a Low Vision
Support Group in your area that is not listed, please
let us know either by phone at 800-843-6816 or by using
the “suggestions” email on this site. Our goal is to
build and maintain a comprehensive, nationwide list of
Low Vision Support Groups. If you do not find a Low
Vision Support Group listed in your area, check back –
new listings are added regularly. |